Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Monday, July 6, 2009

Day +255 : Book by Lance Amstrong, a member of the cancer community

I came across this book two years ago, but I did not buy it. It was during a book sales in PJ.

Here is the review about the book

Lance Armstrong, for those of you who may not know, is a two time Tour De France winner, post cancer, as well as a new Dad and Olympian. He grew up in Texas and trains there and in Europe, a world-class athlete. At 25, already an elite international bike racer, he was diagnosed with a virulent form of testicular cancer that spread to other parts of his body, including his brain, before it was stopped. He was young, strong, an athlete, single, well-off from his racing revenues and he faced a very poor prognosis. What is at least an inspiring story, is at its best a true portrayal of what cancer patients young and old face everyday. Some are not so fortunate with their outcomes, but It's Not About the Bike honestly reveals the side of cancer that most relatives and well-wishers never see: that treatment is truly awful, that patients are heroes, oncology units are places of very human emotion and that sometimes your best one liners pop out when your stomach is roiling and your hair is gone.

On the day of my second surgery, I knew what I was facing. I clutched Lance's book until the last moment before anesthesia when the pre-op nurse respectfully took my glasses and laid the book on the chair by the curtain. I had read and read in the days before and I was comforted. I was going where Lance had gone, I wanted an honest portrayal of the difficulties. I didn't want it sugar coated. He doesn't.

The moment that someone tells you this kind of bad news is profoundly confusing. The shock is immediate and the reaction can be to say: Let's get on with it. Let's get this thing cured and done and go on to the next thing. I don't have time for this. The reality is very different and the beauty and honesty of It's Not About the Bike is that Armstrong tells the entire story, not just the triumphant ending. He takes you through the surgeries, the seemingly endless days of profound chemotherapy induced illness and the rehabilitation. Armstrong guts it out on the pages of his book. You can feel his will. This same will is most certainly what has made him a world class athlete, but applied to cancer, it will inspire even those with no athletic ambitions.
The beginning of the book is filled out with Lance's recollections of his formative years, his indomitable single mother's unstinting efforts to improve their lot as well as Armstrong's early days of racing. We meet his agents, his international cast of friends and colleagues. Armstrong even offers some tantalizing hints at the fierce chess-like moves required of riders and agents in the heady echelons of world class racing. For those who don't follow the sport closely, this peek behind the scenes of international bike racing is enough. The main event in this book is the fight for life.

The most telling chapters are about chemotherapy. In these chapters, Armstrong lays it out for the uninitiated. He pretends no heroics, he tells it exactly as a patient sees it. The cure is horrific, make no mistake. But there is heroism in the telling. There is a wonderfully drawn portrait of his oncology nurse, LaTrice Haney. Lance banters and jokes with her when he can talk at all, he tells her about his bike and she allows him to be human in the midst of his pain. Hers is the best kind of nursing. We meet Jim Ochowicz, Lance's friend who tirelessly tries to distract him during the chemo marathons in the hospital. Heroes abound in this book. If we need to be taught about friendship and compassion, these are the teaching chapters.
Then there is life. In Armstrong's case, his cancer was gone after a year. He could start to rebuild and recondition himself for the road ahead. He attacks the project with the style of the athlete he is. He suffers the post-cancer existential survivor questions and rides through them. He begins a new relationship, falls in love with Kik, his future wife and acts like a guy again. In the pursuit of normalcy he is also one of us. The wedding, the longed for baby and the triumphs follow, but Lance Armstrong will never forget where he has been.

I will always carry the lesson of cancer with me and feel that I'm a member of the cancer community. Anyone who has heard the words You have cancer and thought, 'Oh my God, I'm going to die,' is a member of it. If you've ever belonged, you never leave.

It's Not About the Bike is non-fiction and not for everyone. If you have an interest in the spirit and resiliency of the human mind, read it. You will learn something. If you have a friend or a loved one who is touched by cancer, read it. There is comfort here and hope. If you have cancer, read it. It will give you a light for your heart.




Tuesday, June 2, 2009

Day 212 + : Dr. Hsu's Guide to Surviving Cancer

许医师:想要活下来,很简单,要先改变自己的心情!相信自己,接受癌症,从心改变,改变以后走上身心灵疗疫,就能与癌共存。

懂得重新开始的人,生命就不一样。

不要在家里做三等功民- 等吃,等睡,等死。


Friday, May 8, 2009

Day +182 : Eating Well

I am fine today.

Continue from the topic about diet, the report ( Eating well and being active after cancer treatment) highlight :

WCRF UK’s Recommendations for Cancer Prevention

This publication explains Recommendation number 10.
1. Be as lean as possible without becoming underweight
2. Be physically active for at least 30 minutes every day
3. Avoid sugary drinks. Limit consumption of energy-dense foods (particularly
processed foods high in added sugar, or low in fibre, or high in fat)
4. Eat more of a variety of vegetables, fruits, wholegrains, and pulses
such as beans
5. Limit consumption of red meats (such as beef, pork and lamb) and
avoid processed meats
6. If consumed at all, limit alcoholic drinks to 2 for men and 1 for women a day
7. Limit consumption of salty foods and foods processed with salt (sodium)
8. Don’t use supplements to protect against cancer


Meal ideas

Breakfast
• Whole oats or natural muesli with skimmed milk,
or wholegrain toast with a scrape of margarine
• Fresh fruit e.g., a banana or pear

Mid-morning snack
• Hot drink with skimmed milk
• Fresh fruit e.g., two small plums or nectarines

Lunch
• Salmon, tuna, an egg or some slices of lean chicken
• Lots of salad (e.g., rocket, tomato, grated carrot, cucumber)
• Wholemeal pitta or wholegrain bread roll
• Glass of water

Afternoon snack
• Slice of malt loaf or reduced-fat houmous and vegetable sticks
• Hot drink with skimmed milk
• Low-fat yoghurt

Dinner
• Grilled fish or chicken or a lentil burger
• Brown rice, sweet potato or wholemeal pasta
• Lots of different coloured vegetables (e.g., broccoli, carrots, cauliflower)
• Berries or stewed fruit and a low-fat rice pudding

And remember to keep yourself hydrated by drinking plenty
of water throughout the day.

Thursday, May 7, 2009

Day +182 : Cancer Prevention

I am fine today.

I was told a patient who was very concerned about her health, taking brown rice and almost never touch fried food, but she was diagnosed with CML and passed always few months ago.The conclusion is a lot of concept on "healthy life style" as advocated by natural therapist might not always be true. If you follow everyone's idea, you might end up with nothing to eat and have to hide inside a space suite in order to avoid contact with the polluted environment .We can do our very best to live a healthy life, but I can tell you also no one knows how "healthy" is really "healthy".

The following is the extraction from World Cancer Research Fund about cancer prevention.

Cancer Prevention for Cancer Survivors

WCRF UK recommends that after treatment, cancer survivors should follow the recommendations for cancer prevention.

Anyone who has received a diagnosis of cancer should receive specialist nutritional advice from an appropriately trained professional. Once treatment has been completed, if you are able to do so (and unless otherwise advised), aim to follow WCRF UK’s Recommendations for Cancer Prevention.

Cancer survivors – the evidence

While there have been great steps forward in the last 20 years about what increases and reduces the risk of cancer, there has been a lack of quality research into how to prevent it recurring.
There is some evidence that, particularly with
breast cancer, cancer survivors can reduce their risk of it recurring by eating healthily and maintaining a healthy weight.
But there is not yet enough evidence to make any specific recommendations for cancer survivors as a whole, or for those who are survivors of any specific form of cancer.

WCRF UK and future cancer survivors research

WCRF UK believes that because there is not enough evidence about how to prevent cancer recurring, cancer survivors do not have access to the same quality lifestyle advice as everyone else.Because of this, we have identified cancer survivorship as a key research priority for the scientific work we fund. An example of this is that we are funding a study in Cambridge that is trying to find out how breast cancer patients can stop the disease recurring.

We also try to encourage other organisations that fund cancer research to fund studies that can help us give better advice to cancer survivors than what is available at the moment.
If you want more information on preventing cancer recurring, download our

publication for cancer survivors.
Find out about our other Recommendations for Cancer Prevention
How can you help WCRF UK?

Tuesday, December 23, 2008

DAY +52 : Prognosis

I went to SJMC to have the flushing on my PICC, currently I need to flush my PICC with heparin twice a week to prevent the pipe getting block.

People with cancer will always ask this question, how is my prognosis. According to statistic by US, for Non Hogkin Lympoma (NHL), one year relative survival is 81%, 5 year survival 63% . 10 years after diagnosis with NHL survival rate declined to 49%.

Today, I met a young Leukaemia patient, he have two time transplant in a year. The deases replased after three months of transplant. He went for second mini transplant and currently the bloods count back to normal.

Thursday, December 18, 2008

Day +46 : Misconcept about Cancer

The urine pain still bother me. Hope to get improve in the next few days. Yesterday, Teck Ann drove me to Selayang Hospital to attend the Sosco's Doctor Panel Interview, we waited for 2 hours, the interview session took 5 minutes only and wait for Sosco letter in two weeks time.

Visited the web page of Malaysia oncology, it talk about the common misconcept about cancer, like to share

Common Misconcept about cancer :
Mention the word “cancer” to Malaysians and three words would probably pop into their heads: incurable, pain and death. About a third of cancers are curable yet few people (including doctors) know this. Pain is not inevitable when cancer strikes. And even when there is pain, much can be done about it.Many other misconceptions about cancer abound. "We don't know what causes cancer." Of course we do. "Food has everything to do with cancer." Wrong again! In this article, we will ask (and answer) common questions about cancer:We don't know what causes cancer.The human body is made up of billions of cells. Cells have nuclei, which house their reproductive apparatus, i.e. DNA. Mistakes are made when cells reproduce. Occasionally, such mistakes accumulate and eventually the daughter cells form new blood vessels, invade neighbouring tissues and spread throughout the body. Consequently, vital organs get disrupted and the patient (if untreated) dies. We know the big picture. We are still fleshing out this picture with details.Does smoking cause cancer? And is cancer a lifestyle disease?There is no doubt whatsoever that smoking will increase your chances of contracting lung cancer (and half a dozen other types of cancers). Excessive alcohol consumption may lead to cirrhosis, which may lead to liver cancer. Beetle quid chewing (fortunately a dying habit) causes mouth cancer. Unfortunately, at least two thirds of all cancers cannot be linked to a particular lifestyle or causative agent. That does not mean we should not count our calories, load up on fresh fruit and vegetables and hit the gym. In any case, a good lifestyle will do wonders for your heart, psyche and sex life.

Doctor, what food should I avoid?
Food is not the most important cause of cancer. Neither is it an important modality in the treatment of cancer. It is important that cancer patients observe a diet high in protein, calories and vitamins while undergoing treatment. However, that is a far cry from saying that "this food will prevent cancer" or "that food will cause cancer!"I don't want to undergo cancer treatment because 'good' cells are killedCancer treatment is a judicious combination of surgery, radiotherapy, chemotherapy and molecularly targeted therapy. There is no such thing as medical treatment (for any disease, including cancer) that is devoid of side effects, just as there is no such thing as a free lunch. However, most side effects of cancer therapy are temporary, reversible and manageable. Much progress has been made in the control of nausea and vomiting, which is a frequent side effect of treatment. 'Growth factors' (G-CSF, erythropoietin) are available to combat bone marrow suppression, which is another common side effect of cancer therapy. And the list goes on… If cancer is left untreated, there will be great suffering. Death will ensue within two years in most cases.

What about alternative therapy?What about it? There is no alternative civil engineering, no alternative computer technology and no alternative chemistry. Any treatment for cancer has to be subjected to the rigours of scientific enquiry. This inevitably means a slow, laborious, intellectually honest process that starts in the laboratory, proceeds onto animal studies and finally studies on humans. There is only medicine that works and has been proven, and medicine that is not proven and may not workIs cancer contagious?The simple answer is no. You cannot 'catch' cancer from a patient by touching him or by sharing his utensils and personal effects. Cancer is not spread by air, water, injections and other vectors. Certain cancers are linked to viruses, such as the Human Papilloma Virus and cancer of the cervix, and cancer of the liver. Immunisation plays an important role in the prevention of liver cancer and clinical trials are on the way for the former (cervix). That certain cancers are causally linked to viral infection does not at all make cancer patients infectious. Cancer patients need all the care and compassion they can get. They should not be shunned. On the contrary, a hug and a kiss will go a long way to alleviate their suffering.

Isn't cancer a very painful disease?Cancer can be very painful, especially if cancer tissues directly infiltrate bones and nerves. However, this is not inevitable. More important is knowing that pain management has come a long way. Most pain can be controlled by following an algorithm (a logical stepwise sequence to achieve a goal) recommended by the World Health Organisation. Many new analgesic preparations and adjunctive drugs (or drugs used in parallel) are available. Pain is much less of a problem today.

Is cancer inherited?Only about 10 per cent of cancers can be inherited. Even if you are unfortunate enough to have parents afflicted with this subset of cancer, you may still not get cancer. Remember, you inherit the risk, not the cancer. What you really need is counseling and preventive measures.My sex life is over now that I have cancerFar from it! We aim to fully rehabilitate a cancer survivor. And sex, being the sublime expression of human love and emotion, is so very important. There is absolutely no reason why a cancer survivor cannot have a fulfilling sex life with counseling.

Finally, can we find a cure for cancer?Let us re-phrase that question: Can we find a cure for the two thirds of cancer that are not cured at present? Remember, one third of cancers are cured. Most patients who have their cancer diagnosed early in stage I (confined to the organ of origin) or stage II (only the first station of nodes are involved) are cured by existing modalities and technologies. We are talking here of 70 to 90 per cent cure rates. What about the rest, i.e. the two thirds of cancer patients who are not cured? Researchers now know a lot about the genetic basis of cancer and consequently the chemical messages cancer cells send to other cells. In the future, instead of telling someone 'You have liver cancer', we may say to that person 'Your cancer has a defect in the ras (an oncogene) pathway so you need compounds that are effective for this pathway.' The other theme is (molecularly) targeted therapy. We already have drugs in Malaysia that specifically target receptors (mainly growth factor receptors) found on cancer cell surfaces. These drugs are effective and have few side effects. Only a few patients in a few clinical scenarios are suitable candidates for such therapies. However, the future is bright and many more such therapies are in the pipeline. The wisest approach to the cancer problem is prevention, early diagnosis, appropriate therapy and palliative care. So much is available and so much more is expected in the coming decades.

CHINESE VERSION AVAILABLE. Please download here... The full article can be viewed here. If you have friends or relatives who are diagnosed with cancer, please refer this to them. I believe this would help them to clear a lot of unnecessary doubt.The MOS website is at http://www.malaysiaoncology.org/.