Today, I have a follow up at IPR ( Institute Perubatan Respiratori) - Institute Medical of Respiratory.
The follow up is about once a month. This is my third time appointment, however I still don't have chanced to meet with my principal Doctor. Each time, I have different doctor seeing me, and they just fill up the progress report without exam you in details.
Today, the culture results also confirm I have Non-TB micro bacteria. I have the similar test conducted at Sunway in Feb 2011.
I was diagnosed with Lymphoma March 2008. After 7 cycles of chemotherapies, the doctor suggested me to do a peripheral blood stem cell transplant (PBSCT) to increase the chances of a permanent cure. I use this blog to account for some of my experiences and my life after the transplant
Thursday, August 4, 2011
Wednesday, August 3, 2011
Day +1006 : Dog - Pomeranian
My neighbour Mr Wong bought a Pomeranian dog, named MayLuck. I just recalled Thailand first women Prime Minister, also have LUCK in her name, INGLUCK. Me and Xinyi enjoy playing with the the dog. 
From WIKI,
"Pomeranians are typically a very friendly and lively breed of dog. They love to be around their owners and are known to be protective of them.[9] They bond quickly with their owners, and can suffer from separation anxiety if not trained to spend time alone.[10] Pomeranians are alert and aware of changes in their environment and barking at new stimuli can develop into a habit of barking excessively in any situation. They are somewhat defensive of their territory and will thus bark when they encounter any outside noises.[10] Pomeranians are intelligent dogs, respond well to training, and can be very successful in getting what they want from their owners.[9]"

From WIKI,
"Pomeranians are typically a very friendly and lively breed of dog. They love to be around their owners and are known to be protective of them.[9] They bond quickly with their owners, and can suffer from separation anxiety if not trained to spend time alone.[10] Pomeranians are alert and aware of changes in their environment and barking at new stimuli can develop into a habit of barking excessively in any situation. They are somewhat defensive of their territory and will thus bark when they encounter any outside noises.[10] Pomeranians are intelligent dogs, respond well to training, and can be very successful in getting what they want from their owners.[9]"
Monday, August 1, 2011
Day +1004 : Piano test
I am fine.
Yesterday, Stanley brought me few more books to read. I just completed a book about cycling round the Taiwan island. Now, reading a new book about a man with his dog.
Today, my daugther Xin Yi is sitting her Grade 3 , piano practical test at Hilton Hotel. The exam last for about 12 minutes. She said not doing that well this time. I comforted her that things may not be that worse as she think.
Coincident my U mate, Tew - land surveyor also bringing his daughter to do sit for the piano test as well. Tew is staying in Puchong Hartamas, just next to Bandar Puteri.
Last week, Ivy told me, Mr & Mrs Chin were hit by a motorbike. Mr Chin survive with bruises, but Mrs Chin don't. They were walking to attend the Tai Zi class at Taman Wawasan, the motorbike who is newspaper delivery man, hit them in the middle, Mrs Chin suffered serious internal bleeding. We have celebrated Mrs Chin birthday last year, we are the Yuangji members. I feel sorrow for Mr Chin losing his partner, they are such a loving retired couple. There is nothing in the world can be impacted so much than losing a love one.
Yesterday, Stanley brought me few more books to read. I just completed a book about cycling round the Taiwan island. Now, reading a new book about a man with his dog.
Today, my daugther Xin Yi is sitting her Grade 3 , piano practical test at Hilton Hotel. The exam last for about 12 minutes. She said not doing that well this time. I comforted her that things may not be that worse as she think.
Coincident my U mate, Tew - land surveyor also bringing his daughter to do sit for the piano test as well. Tew is staying in Puchong Hartamas, just next to Bandar Puteri.
Last week, Ivy told me, Mr & Mrs Chin were hit by a motorbike. Mr Chin survive with bruises, but Mrs Chin don't. They were walking to attend the Tai Zi class at Taman Wawasan, the motorbike who is newspaper delivery man, hit them in the middle, Mrs Chin suffered serious internal bleeding. We have celebrated Mrs Chin birthday last year, we are the Yuangji members. I feel sorrow for Mr Chin losing his partner, they are such a loving retired couple. There is nothing in the world can be impacted so much than losing a love one.
Thursday, July 28, 2011
Day +1000: Thankyou
Today marked the 1000th day of my bone marrow transplant.
I would like to thank every one of you who gave me tremendous support in facing this challenging episode of life; my wife, dad and mum, my sisters & brother, relatives, classmates, friends, colleagues. A thousand days only possible with you.
I would like to thank every one of you who gave me tremendous support in facing this challenging episode of life; my wife, dad and mum, my sisters & brother, relatives, classmates, friends, colleagues. A thousand days only possible with you.
Wednesday, July 27, 2011
Day +998: Miracle in The Andes

I am fine today, despite being annoy by numbness and tinnitus.
This is the second time I have this book.
This review is from: Miracle in the Andes: 72 Days on the Mountain and My Long Trek Home. Piers Paul Read wrote the great book Alive and after an excellent movie it could be thought there was little more left to the actual story. Wrong. Nando Parrado adds much much more to this survival story and doesn't re-tell like Read but lets you know what happened to him and his emotions on the mountain. This is a great companion to the classic book. Most (myself included) wanted to be Nando - he was strong, and saved his friends through unreal internal fortitude - he's a genuine hero. His is one of the most compelling survival stories in recorded history and this is a worthy memoir.
Where Read lets you know what happened Parrado lets you know the why's and how's they survived - the real heart of this story. He let's the reader know in more detail the miserable existence on the mountain. When you read his thought "tears waste salt" it might sound cold hearted but it was the RIGHT thought and you begin to understand his inner strength. His thoughts about his family are touching, his feelings about his great father are insightful - what a fortunate son, what a fortunate father. Without his father the disappearance of the plane would remain a mystery.
In an interview Roberto Canessa once said the survivors know each other better than anyone. I really didn't understand that until reading this book. Parrado also sheds light on some negative depictions of survivors in Read's book and it helps the reader understand their actions. I also enjoyed reading what happened to Parrado after the incident and how the words and behavior of his friends who died on the mountain has influenced him. It took Parrado a long time to realize how inspirational his story is and it's great he's written his story. Make no mistake; this story is not about cannibalism, it is about love, survival and determination. I'm a better person for having read this book.
Monday, July 25, 2011
Day +994: Good Doctor
I am fine today. In the last three years, I have consulted many specialist, some of them are good , they listen and care about your progress, even giving you discount.
Some of them just don't have time to listen the details, they are arrogant and inpatient.
Extracted an article from Dr.Hsu, what is good doctor.
"
如何鑑定一位好醫師--「良醫七要件」
生病要找醫師,如果遇到密醫或蒙古大夫,輕者浪費金錢時間,重者誤診誤醫
。而一位良醫,即使無法讓您藥到病除,至少會指引您另請高明。過去無執照的密
醫很多,現在的醫師雖然有執照,但隨著時代的變遷,也變得急功近利,短視而缺
德,或過度自我保護、或自我膨脹,一切以己身利益著想。昔日醫師誓詞所求,對
病患的無限奉獻與服務,早丟到九霄雲外了。當然好的醫師依然很多,但如何去分
辦?以下幾點可供參考:
(一)口碑:
大家都說好,雖不是十全十美,至少有可信度的,值得去瞭解。
(二)仔細聆聽病情:
問診是所有診斷的第一步驟,只有詳細的病史,才能作正確的判斷。
(三)詳細的身體檢查:
問診之後,就是觸診或聽診,這是診斷的基本功夫,是不容疏忽的。經由醫
師專業的知識與雙手的靈巧,誤診的可能自會降低。
(四)安排適當的檢查:
有了問、觸、聽診之後,醫師就其必要會安排各種必要的檢查以協助診斷或
治療,每一種檢查都有其目的與判讀限制或危險性,醫師應會詳細解說。
(五)完整的病情說明:
適所有資料齊全,醫師必定會給以充分的解說,或已有診斷、或治療分析、
或疾病癒後、或如何防治等等。
(六)全面性的完全服務:
不知為不知是知也,這是至理名言。醫學如瀚海,沒有一位醫師能十項全能
,會診或指引其另請高明,就是醫德的表現。病人所有問題,大如病情惡化
,小如飲食起居都應給以正確的安排。
(七)定期的主動追蹤:
一次的治療,未必代表是痊癒。尤其是許多慢性病是要長期治療或追蹤的。
除了要告知病家定期回診外,更應該主動追蹤,如電訪、問卷、居家護理等
等。醫療服務是永不間斷的。
各位病家如果以以上「良醫七要件」來鑑別您的醫師,自然會得到好的醫療服務。
Some of them just don't have time to listen the details, they are arrogant and inpatient.
Extracted an article from Dr.Hsu, what is good doctor.
"
如何鑑定一位好醫師--「良醫七要件」
生病要找醫師,如果遇到密醫或蒙古大夫,輕者浪費金錢時間,重者誤診誤醫
。而一位良醫,即使無法讓您藥到病除,至少會指引您另請高明。過去無執照的密
醫很多,現在的醫師雖然有執照,但隨著時代的變遷,也變得急功近利,短視而缺
德,或過度自我保護、或自我膨脹,一切以己身利益著想。昔日醫師誓詞所求,對
病患的無限奉獻與服務,早丟到九霄雲外了。當然好的醫師依然很多,但如何去分
辦?以下幾點可供參考:
(一)口碑:
大家都說好,雖不是十全十美,至少有可信度的,值得去瞭解。
(二)仔細聆聽病情:
問診是所有診斷的第一步驟,只有詳細的病史,才能作正確的判斷。
(三)詳細的身體檢查:
問診之後,就是觸診或聽診,這是診斷的基本功夫,是不容疏忽的。經由醫
師專業的知識與雙手的靈巧,誤診的可能自會降低。
(四)安排適當的檢查:
有了問、觸、聽診之後,醫師就其必要會安排各種必要的檢查以協助診斷或
治療,每一種檢查都有其目的與判讀限制或危險性,醫師應會詳細解說。
(五)完整的病情說明:
適所有資料齊全,醫師必定會給以充分的解說,或已有診斷、或治療分析、
或疾病癒後、或如何防治等等。
(六)全面性的完全服務:
不知為不知是知也,這是至理名言。醫學如瀚海,沒有一位醫師能十項全能
,會診或指引其另請高明,就是醫德的表現。病人所有問題,大如病情惡化
,小如飲食起居都應給以正確的安排。
(七)定期的主動追蹤:
一次的治療,未必代表是痊癒。尤其是許多慢性病是要長期治療或追蹤的。
除了要告知病家定期回診外,更應該主動追蹤,如電訪、問卷、居家護理等
等。醫療服務是永不間斷的。
各位病家如果以以上「良醫七要件」來鑑別您的醫師,自然會得到好的醫療服務。
Subscribe to:
Posts (Atom)