Day +280 : Planning

I am fine today. This morning I am back to morning 's qi gong class.

I dropped by to Lay Hong's shop yesterday, returning some books to her. We chit chat for nearly an hour plus. We were sharing our life story. Both of us have been experiencing the difficult episode in our life before, we have muddling through the journey.

Sometimes my colleague asked what is your plan ? I said I don't plan, but the most important thing is to have happy life every day. Life sometimes is unpredictable, appreciate what you have now. Forget the future or past.

Day +279 : Birthday Party

I am fine. Yesterday night I took a 100mg Thilax given by doctor, it really make me drowsy, I miss the morning qi gong class.

Last Sunday, Xin Yi attended her classmate's birthday party, Jasmine Yeo. Kid is always excited when have chance to attend birthday celebration. Xin Yi told me she wake up early because of her friend birthday.

Jasmine told Xin Yi , she is very lucky , not need to attend many classes. Jasmine only off on Sunday. She need to attend additional cl assess from Monday to Saturday. I realise kid can be happier just by giving them more time to play instead of tuition

Day +278 : Follow Up

I am fine today.

I have a follow up with Dr Alan today. My last follow up was about a month ago 30 June.

HB : 14.7 (13.6) ( Normal Range 13.0 to 18.0)
Platelets: 126 (151) Normal Range 150 to 400)
Total WBC : 5.3 (8.9) Normal Range 4.0 to 11.0)

The platelets drop mainly due to GVHD ( a rejection). I asked Alan why I always feel breathless. For example, even working from car park to Dr Alan's clinic O( about 150m), I feel short of breath. The answer is - GVHD happen in my lung. Today, he add additional drug which to be taken at alternative day. The side effect is the drug make you drowsy. My next follow up is two weeks from now. I will do the lung test by that time.

Day +275 : Happiness

I am fine today. I did not attend this morning exercise, I don't get a good sleep last night. So, I skip the morning qi gong class, in return I sleep through until 8:30am. I used to get up at 6:00am.

Why I can't sleep well ? probably I think too much.

Day +274 : Side effect of Prednisolon - steroid

I am fine today. I spent more time in the office now. Sometimes I spent whole day in the office. I am more actively involved in the daily business.

I have been taking steroid Prednisolon daily since my transplant as a measure to combat the GVHD. Currently the dosage rate has been reduce from 2 tablets to 1.5 tables per day.

• According to document on the Wikipedia, the side effects of Prednisolon includes:
  weight gain
  facial swelling
  depression, mania, or other psychiatric symptoms
  unusual fatigue or weakness
  Mental confusion/indecisiveness
  blurred vision
  abdominal pain
  peptic ulcer
  infections
  painful hips or shoulders
  osteoporosis
  acne breakouts
  insomnia (sleeping disorder)
  severe joint pain
  cateracts

Currently I have facial swelling and acne breakouts only

The doctor start reducing my Prednisolon dosage. It can be life-threatening to stop the drug abruptly especially for those who has taken it over a long period of time. Therefore, I would expect it will take months before I can stop taking this drug.

Day +273 : Shortness of breath

I am fine. I miss my morning qi gong class due to the rain.

I experience shortness of breath for quite sometimes. It look like I always need to breath deeper to get in the oxygen. In the same time, my heart bit also faster than normal.

It may due to medication I took. Then, I hope this symptom was slowly get away.

Day +270 : Flying Kite

I am fine.

My daughter Xin Yi has been asking me to buy her a kite many times. Kid right now is smart in negotiating deal, when I asked her to practice piano and do Kumon, in return, she want something. In order not to upset her again, I bought a kite on last Saturday, the price is RM13 , come with string as well.

I still have to avoid the sunlight, my younger sister bring them to fly the kite. I just took some photos and head back to house immediately. Xin Yi told me she enjoy the games.