I am fine today.Yesterday
I went to SMJC for follow up. The blood test resuts :
My bloods test results on 11 August.Readings in square bracket [] are result from previous test.
Haemoglobin (HB) = 14.4[14.4] (Normal 13-18)
Platelet = 138[126] (Normal 150-450)
Total White Blood Count (WBC) = 9.8[5.2] (Normal 4 - 11)
The total WBC reading elevated due to steroid drug - Prednisolone, which use to control GVHD. Last follow up, I complained the problem of breathless, Dr Alan have ordered me to do X Ray and lung test. The X ray on chest show normal heart size, no evidence of heart failure, no focal lung lesion. However the lung test confirm I have severe obstructive lung defect.
Dr Alan confirm this is due to GVHD in the lung. He said lung is the vital organ, have to monitor closely. He want the follow up on two weeks basic, instead of one month. He changed the drug. I used to take cyclosporin to control GVHD, the new drug called Prograf. The good new is I only need to take two tablet a day, instead of 6 tablet cyclosporin.
Besides Prograf, I also given Thalix 100mg. Previously I take it at alternative day. Now, the dose is daily. It cause drowsiness, I have a better sleep now.
Wednesday, August 12, 2009
Day +292 : Follow up
I am fine today.
Yesterday I went to SMJC for follow up. The blood test resuts :
My bloods test results on 11 August.Readings in square bracket [] are result from previous test.
Haemoglobin (HB) = 14.4[14.4] (Normal 13-18)
Platelet = 138[126] (Normal 150-450)
Total White Blood Count (WBC) = 9.8[5.2] (Normal 4 - 11)
The total WBC reading elevated due to steroid drug - Prednisolone, which used to control GVHD. Last follow up, I complained the problems of breathless, Dr Alan have order me to do X Ray and Lung test. The X ray on chest show normal hear size, no evidence of heart failure, no focal lung lesion. However the lung test confirm I have severe obstructive lung defect.
Dr Alan confirm this is due to GVHD in the lung. He said lung is the vital organ, have to monitor closely. He want the follow upon two week basic, instead of one month. He changed the drug. I used to take cyclosporin to control GVHD, the new drug is
Yesterday I went to SMJC for follow up. The blood test resuts :
My bloods test results on 11 August.Readings in square bracket [] are result from previous test.
Haemoglobin (HB) = 14.4[14.4] (Normal 13-18)
Platelet = 138[126] (Normal 150-450)
Total White Blood Count (WBC) = 9.8[5.2] (Normal 4 - 11)
The total WBC reading elevated due to steroid drug - Prednisolone, which used to control GVHD. Last follow up, I complained the problems of breathless, Dr Alan have order me to do X Ray and Lung test. The X ray on chest show normal hear size, no evidence of heart failure, no focal lung lesion. However the lung test confirm I have severe obstructive lung defect.
Dr Alan confirm this is due to GVHD in the lung. He said lung is the vital organ, have to monitor closely. He want the follow upon two week basic, instead of one month. He changed the drug. I used to take cyclosporin to control GVHD, the new drug is
Sunday, August 9, 2009
Day +289 : Twilight
I am fine today. I still feel breathless most of time. Up down of staircase, I need to take a deep breath, Last Visit, Dr Alan said maybe my lung is affected by GVHD (rejection). This coming Tuesday, I will take the lung test to check if my lung functioning well.
Last friday night, Hiap Soon and Teck Ann drop by. Hiap Soon brought me a series of books on Twilight. I asked him to buy them in Shanghai. It is much cheaper getting them in China . For the same price, you paid in Renminbi .
Hiap Soon has brought me many books, I think more than 20. I really appreciate this a lot. My free time is with book, Internet, music, video. I have a phobia go to public place, concerning about the Haze and H1N1, my choice is staying in the house.
Last friday night, Hiap Soon and Teck Ann drop by. Hiap Soon brought me a series of books on Twilight. I asked him to buy them in Shanghai. It is much cheaper getting them in China . For the same price, you paid in Renminbi .
Hiap Soon has brought me many books, I think more than 20. I really appreciate this a lot. My free time is with book, Internet, music, video. I have a phobia go to public place, concerning about the Haze and H1N1, my choice is staying in the house.
Saturday, August 8, 2009
Day +288 : Jin Hao & Yu Ting & Xin Yi
I am fine today. The additional drug which I took for GVHD control make me make drowsy.
Fong Ming's princess Yu Ting, is now my son, Jin Hao best friend. They are studying at same school. Everyday, either Yu Ting come to my house or Jin Hao went over to Fong Ming 's house. One of their favourite games is Masak-masak. ( Cooking)
My daughter , Xin Yi is also good friend of Yu Ting, they already know use telephone to chit-chat.
Fong Ming's princess Yu Ting, is now my son, Jin Hao best friend. They are studying at same school. Everyday, either Yu Ting come to my house or Jin Hao went over to Fong Ming 's house. One of their favourite games is Masak-masak. ( Cooking)
My daughter , Xin Yi is also good friend of Yu Ting, they already know use telephone to chit-chat.
Tuesday, August 4, 2009
Day +285 : Facebook
I am fine today.
Today I received an alert from Facebook to confirm Chin Chu ( Pearl Low) as friend. I have posted few set of photos in the Facebook to share with your. You may in these photo. It also include my recent activities, like pot luck gathering at Fong Ming's house. The old photos -my secondary school 5S1, university life, hospital life, conquering the Mt Kinabalu.
Stanley and Hock Ling also quite active posting photos at their facebook account.
http://www.facebook.com/album.php?aid=78312&id=810633849#/profile.php?id=810633849&ref=name
Today I received an alert from Facebook to confirm Chin Chu ( Pearl Low) as friend. I have posted few set of photos in the Facebook to share with your. You may in these photo. It also include my recent activities, like pot luck gathering at Fong Ming's house. The old photos -my secondary school 5S1, university life, hospital life, conquering the Mt Kinabalu.
Stanley and Hock Ling also quite active posting photos at their facebook account.
http://www.facebook.com/album.php?aid=78312&id=810633849#/profile.php?id=810633849&ref=name
Monday, August 3, 2009
Day +284 : Examination
I am fine today.
Xin Yi will sit for their term examination again in this two weeks. Every time exam coming, my wife will use this word, 学书, probably Sarawak style. I used 读书。
Xin Yi no doing well in the last exam, the ranking drop from 11 to 40. Onetime she even cry, because one of the paper below 80 marks. I show her my form five results, average mark was about 79. She scored average 91, I said she is doing much better than daddy.
Come back to the old questions, do you think we should emphasis on scoring more A ? my answer is NO, given me a chance , I would rather spend more time in outdoor activities than studies. I told Xin Yi enjoy your life, don't be too much bother by the school's works.
Xin Yi will sit for their term examination again in this two weeks. Every time exam coming, my wife will use this word, 学书, probably Sarawak style. I used 读书。
Xin Yi no doing well in the last exam, the ranking drop from 11 to 40. Onetime she even cry, because one of the paper below 80 marks. I show her my form five results, average mark was about 79. She scored average 91, I said she is doing much better than daddy.
Come back to the old questions, do you think we should emphasis on scoring more A ? my answer is NO, given me a chance , I would rather spend more time in outdoor activities than studies. I told Xin Yi enjoy your life, don't be too much bother by the school's works.
Saturday, August 1, 2009
Day +282 : Art Class
I am fine today.
I asked my son whether he like to draw, the answer is Yes. He really like to draw, he even draw in my notebook , Something he did some touching works on his sister's art work. By Then , his sister will cry and complain.
Today, I enrolled Jin Hao to Artworkshop in Bandar Puteri ( www.artworkshop.com.my), where his sister have attended the art class for about 3 three years. Xin Yi pick up a good drawing skill from the class.
The art class started from 10am to 12pm. Jin Hao said he like the class, ask me if he could come again tomorrow. This is the first drawing he made in the class called creepy spiders
I asked my son whether he like to draw, the answer is Yes. He really like to draw, he even draw in my notebook , Something he did some touching works on his sister's art work. By Then , his sister will cry and complain.
Today, I enrolled Jin Hao to Artworkshop in Bandar Puteri ( www.artworkshop.com.my), where his sister have attended the art class for about 3 three years. Xin Yi pick up a good drawing skill from the class.
The art class started from 10am to 12pm. Jin Hao said he like the class, ask me if he could come again tomorrow. This is the first drawing he made in the class called creepy spiders
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